Month: October 2018

Hey, Pop

Hey, Pop. I haven’t talked to you in a while, and I just want to say hi and see how you’re doing. I know you’re doing well, though. 

The Perfect Birthday Present

I completed my 41st year on the 30th of last month. Birthdays are usually a big event when you’re a kid. There’s cake and ice cream, presents from all your family members, parties with your friends, and you get to feel special for moving ahead and leaving all those other kids behind until they catch up to you at some point in the next … Read More The Perfect Birthday Present

The View From Nicky’s Seat

The following is a Facebook post from Nicky Williams Dexter. She shared her daily reality and it gripped me. She and I share the struggles of FSHD yet we have different experiences. I’m reposting this with her permission. If you’d like to contact her, she accepts all friend requests from folks interested in FSHD. I encourage all of you to drop her a line … Read More The View From Nicky’s Seat