I fought it. The symbol of weakness sat by itself in the guest room where I never went. Whenever I struggled to walk past the door, I purposefully averted my eyes, looking down or away. I did anything I could to avoid dealing with the wheelchair the young guy delivered in October of 2007. It was an ominous sign of my fading independence that I hated both for its invasion of my house and what it stood for.
The following is a Facebook post from Nicky Williams Dexter. She shared her daily reality and it gripped me. She and I share the struggles of FSHD yet we have different experiences. I’m reposting this with her permission. If you’d like to contact her, she accepts all friend requests from folks interested in FSHD. I encourage all of you to drop her a line of support on Facebook. Continue reading
I opened my computer and saw where we’ve lost one of the great minds of all times. Stephen Hawking passed away at 76. Not only was he remarkable because of his intellect, but he was able to fight off ALS for 55 years after being diagnosed with the disease which usually proves fatal within 2 years of being diagnosed. Maybe he just outsmarted it.
My advice to other disabled people would be, concentrate on things your disability doesn’t prevent you doing well, and don’t regret the things it interferes with. Don’t be disabled in spirit, as well as physically. -Stephen Hawking
Today, I contacted the Mississippi Department of Rehabilitation Services concerning a few areas of service they provide. One request concerned funding assistance for someone to help me a few hours a day with stuff around the house and the other was concerning some minor adaptive equipment for my car. I’ve used Voc Rehab several times in the past to help cover the exorbitant cost of medical equipment and vehicle modifications so I can remain a somewhat independent productive member of society. Continue reading
On the way home from work one day 10 years or so ago, I decided to pick up a burger for supper, so I drove through the new Dairy Queen and grabbed a cheeseburger value meal with a root beer. I’m a fan of DQ’s cheeseburgers because they’re super cheesy, and they don’t force me to pick off a salad’s worth of soggy vegetables before I take my first bite. (I get all the vegetables I need with the ketchup.) Continue reading
There are only a few days left until the donation window closes for the 2017 MDA Muscle Walk. This has been my first foray into fundraising, and I have to say it’s not easy. I’ve spent a lot of time shaking the trees, hoping something would fall out. Continue reading
I was aware of Tom Ramsey long before I met him. He was the chef I’d heard good things about around town, and the guy that I watched win the premier episode of Guy’s Grocery Games on The Food Network. His list of professional accomplishments has since grown at an impressive clip.
This year, I’m doing something that I’ve always absolutely loathed. I broke my anti-fundraising rule and have volunteered to raise funds for the annual Muscular Dystrophy Association Muscle Walk.