Tag: Muscular Dystrophy

I was the ballast and the hydration distribution engineer

I graduated from Brandon High School on the afternoon of Sunday, May 26, 1996, at the Jackson Municipal Auditorium. Once we all finished walking across the stage (with the exception of Mark who was on crutches after falling out of a tree while wearing a tutu a few nights before), I turned in my rented cap and gown and took pictures with my friends … Read More I was the ballast and the hydration distribution engineer

The View From Nicky’s Seat

The following is a Facebook post from Nicky Williams Dexter. She shared her daily reality and it gripped me. She and I share the struggles of FSHD yet we have different experiences. I’m reposting this with her permission. If you’d like to contact her, she accepts all friend requests from folks interested in FSHD. I encourage all of you to drop her a line … Read More The View From Nicky’s Seat

Time is winding down

There are only a few days left until the donation window closes for the 2017 MDA Muscle Walk. This has been my first foray into fundraising, and I have to say it’s not easy. I’ve spent a lot of time shaking the trees, hoping something would fall out.