The following is a Facebook post from Nicky Williams Dexter. She shared her daily reality and it gripped me. She and I share the struggles of FSHD yet we have different experiences. I’m reposting this with her permission. If you’d like to contact her, she accepts all friend requests from folks interested in FSHD. I encourage all of you to drop her a line … Read More The View From Nicky’s Seat
(…continued) By the time college rolled around in the fall of 1996, my muscular dystrophy had progressed to the point where getting up from a chair was difficult. I had to be aware of what material the soles of my shoes were made of and the type of flooring to be sure there was enough grip for me to do the awkward dance I … Read More It was time to take a load off: College
I grew up blessed to have two responsible, loving parents in a completely stable environment. I never had a need that wasn’t met, but my wants were satisfied with reserve. Now, I’m grateful for that reserve. Mom and dad were very concerned about my academic success, and they pushed me to do my best constantly. No matter how much I resisted them to try … Read More How’d I make it to here?