The View From Nicky’s Seat

The following is a Facebook post from Nicky Williams Dexter. She shared her daily reality and it gripped me. She and I share the struggles of FSHD yet we have different experiences. I’m reposting this with her permission. If you’d like to contact her, she accepts all friend requests from folks interested in FSHD. I encourage all of you to drop her a line of support on Facebook. Continue reading

It was time to take a load off: I worked my way up to it

(…continued)

In the summer of 2002, while I was dealing with the issues involved in getting my Master’s diploma mailed to me, I was also looking for a job. Unlike my previous job searches as a high school kid looking for a way to buy hamburgers and movie tickets, this time I was packing two¬†college degrees earned with pretty decent GPAs. I thought there would be tons of employers out there looking for a guy with my pedigree.

Continue reading